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sokotosh (October 9, 2008 at 11:04 am)
That's what I wanted to write down after I've seen the video. I'm too tired, my concentration is horrible and I'm too confused to tell it the way you did Ang. So thank you for this reaction and your encouragement!Lots of Love for all the sufferers of ME/CFS and their families.Big Hug, Sokotosh X
sayWHAT1891 (October 4, 2008 at 2:30 am)
I'm now 17 (in my grade twelve year), and I first got CFS when I was 15. My friends constantly say "Woah, you're at school for once. I forgot what you looked like." I must say, it's not easy, I know exactly what you're going through and I wish all the best to you :)
littleang100 (September 29, 2008 at 9:05 pm)
As a sufferer of ME/CFS I broke down and cried at this video. It made me realise that there are people out there who understand and know what myself and others are going through!!! Hang on in there my fellow sufferers!!!!Love Ang (AKA, Sleepin Beauty) xxx
vincent4500 (September 25, 2008 at 11:48 pm)
had CFS since 23 until recently, terrible disease..thing is I had severe depression/anxiety before..the severe chronic insomnia and endocrine/immune system damage of that catapulted me into CFS/fibro..however it is an organic illness and what doctors aren't intelligent enough to understand is the principle of INteractive INdependence in such Syndrome disorders..depression is INteractive (contributes/worsens CFS) but curing the depression doesn't get rid of the real organic damage accrued
vincent4500 (September 25, 2008 at 11:43 pm)
I had it since 23 until about30..some symptoms etc do relapse occasionally..took me a superhuman effort and determination to generally get to level at now..got a full time job and busy social life, 99 % better..for me it was a mixture of T3 thyroxine deficiency (suspected in most fibro/CFS sufferers), suppressed immune system, allergies as a result (candida believe it or not!), interactive but Independent depression/anxiety..bloody complicated illness and those who promise 'magic bullets' lie
LaceyDollie (September 18, 2008 at 6:50 pm)
i have M.Ebeing a 14 year old teenager at school, people seem to think all i do is skive.which is totally wrong.
conniehenry1 (August 27, 2008 at 1:17 am)
I have finally been diagnosed with Fibromyalgia - but having to change drs. - which hopefully will be a good thing. More than likely I am also CFS. Have several wonderful friends with CFS - we are all the same age. I ust wonder - how far back in time does this "new diagnosis" go. My mother is the typical non believer - but I wonder if that is what my dad has suffered from for years. Bless his heart - he still plugs along.....but not getting the help he really probably needs.
Cynthia1387 (August 21, 2008 at 2:59 pm)
I found this bite to be short yet packed with the facts that those not understanding this horible disease, would understand. Good Job!
AmethystStar70 (August 19, 2008 at 4:48 am)
After being sick for the past 9 years. I finally was diagnosed 7 years ago with CFS/FM-ME. So many in my family do not understand this disese. Thanks for this video. I have sent it to a few family members with the hopes that they will take the time to watch it.
frisco5142 (August 13, 2008 at 8:12 pm)
i have had me for at least 2 years, and i was only diagnosed eairlier this year because i also have other illnesses.i have 2 autistic brothers that i try to set a good example for, and have been teaching them, and my little sister, music since both of my grandfather died 6 months ago. i try to keep cheerful because my family is going through an incredibly stressful time and sometimes it is the only way i can help. |
